I’ve been trying to find another website that quickly and easily explains what the doctors (finally) think is up…but I can’t. So I will try and explain how I see it – which might include medical inaccuracies but I’m doing the best with what I’ve been told and what I have read.
This is how my brain has interpreted it.
The underlying condition behind my possible condition is hypermobility. Put simply, due to a problem with the collagen in my body, everything is just way too bendy and stretchy. This means my blood vessels and all sorts of other things are too elastic.
So take some of my symptoms for example:
- My stomach doesn’t have the ping in it to really get my food moving so it sits about making me bloated and sicky and uncomfortable. This means smaller, easier to digest foods and not too many icky carbs which my stretchy stomach can’t handle.
- It can cause migraines. I can’t find an explanation of why anywhere but I assume it’s something to do with my blood vessels not contracting properly and the blood all wooshing around too freely. This can mean it sometimes ends up all down in my legs with not a lot left for the rest of me – a bit like a man’s brain and his penis trying to think at the same time.
- Somehow or another, this can also lead to Restless Leg Syndrome which is the probable cause of me feeling like I never, ever sleep. My sleep is disturbed and I rarely get into that nice, deep REM sleep that makes you feel fresh as a daisy because my legs are twitching away while I sleep.
The main outcome of this is that the consultant thinks I have, as a result of the hypermobility and way too elastic blood vessels, something called PoTs (Postural Tachycardia Syndrome). In simple terms, this is an abnormal response by the involuntary nervous system to becoming upright. This part of the nervous system is in charge of all bodily functions that we don’t have to think about, such as:
Heart rate and blood pressure
Basically, I stand up and my body thinks “HOLY SHIT, WHAT ARE YOU DOING”. Because of my stretchy blood vessels, too much blood rushes down to my legs leaving none for the rest of me….so my body then wants to lay back down again, quickly, and not do anything for a while.
Anyhow, more can be read about it if anyone is interested, here.
So I think I explained that all ok, considering.
I’m now waiting on a letter and yet more wonderful test to confirm that the doctor is right. It’s all a bit much to take in and get my head around as not an awful lot is known about it. I will just be glad when I have an explanation as to why I always feel like crap.
At least now I know that it wasn’t all in my head, as my GP was trying to imply.